A trip to the playground for Rayna Medina isn't the same as most kids her age.Medina, 4, was diagnosed with Epidermolysis Bullosa at birth. The disease causes her skin to blister easily."She's missing a layer of her skin, the dermis, that holds her two skins together. Any friction or rubbing causes it just to tear," explained Medina's mom, Diana Cancino.Rayna's parents have to cover their daughter's skin with a special wrapping fromr her neck to her feet so she doesn't develop a skin infection."She bumps into something, she'll get a blister. You gotta pop it right away, lance it or it will just get bigger and bigger," Cancino said.Doctors told Cancino that Rayna would live to be between three years old to a young adult. Her mom says every day is a miracle. "Take every moment that you have with your kids and make it special because you never know when they're gonna be gone," she said.Young girl's life-threatening disease doesn't stop her from realizing her dream
CNN, CNN-IBN, Nepal State TV, YouTube/Jost Kobusch, Carsten Pedersen, Kishor Rana
Omar Havana/Getty Images
Sign up for Breaking News, Daily Headlines, Severe Weather Alerts & more!